» » » » » Actually, I come to hairsite every day. I only post on occasion.
» I
» » » am
» » » » » not blaming anyone and I really do not care to say that “I told
» you
» » » so”.
» » » » I
» » » » » just want my hair back. As far as taking the initiative and
» » focusing
» » » on
» » » » a
» » » » » business plan, I feel that if I can’t get support here, it’s not
» » » worth
» » » » » trying. If the members of this forum aren’t motivated enough to
» » even
» » » » » discuss this topic…then %#*& it…I can’t do it alone! I’m
» » just
» » » » » afraid that we will be here 10 years from now discussing these
» same
» » » » topics
» » » » » and looking forward to the cure to be out in 5 years.
» » » »
» » » » I never said I was opposed to your idea; I’m simply saying you need
» » » more
» » » » than a mere thought; . For example, I think we should have more
» » » » fuel-efficient cars in light of the high gas prices; we should
» solve
» » » world
» » » » hunger, we should end illiteracy, and I think it’s time we kicked
» » » cancer’s
» » » » ass… Pretty awesome ideas… too bad they have no plan of attack.
» » » »
» » » » a) you say you want hair/ more hair? - we all do.
» » » »
» » » » b) you want to pool knowledge? - work with hairsite admin on a wiki
» » » page.
» » » »
» » » » c) you want to offer an h-prize for biotech’s? - where’s the
» » business
» » » » plan that will direct us how to collect funds, investigate claims
» and
» » » » dispense milestone payments?
» » » »
» » » » d) you want more companies to research hairloss? - again, work with
» » » » hairsite to make a biotech masterlist whom we can contact/ coax
» into
» » » this
» » » » research field.
» » » »
» » » » e) you want to create a way to verify findings? - Contact some of
» the
» » » HT
» » » » doctors on this site; ask them if they’re interested in being part
» of
» » » an
» » » » informal committee that can look-over new findings. You’ll need
» legal
» » » » assistance as well (you don’t want committee members exploiting
» these
» » » » findings for their personal/ financial gains).
» » » »
» » » » f) you considered coaxing individuals to DIY formulas? - the
» world’s
» » » full
» » » » of morons barely smart enough to sue you. Work to make a better
» » forum,
» » » so
» » » » people are encouraged to try new ideas WITHOUT feeling you told
» them
» » to
» » » try
» » » » something (that can land you in financial trouble).
» » » »
» » » »
» » » »
» » » »
» » » » .
» » »
» » » Rev,
» » »
» » » I appreciate your show of support (?). You’re right, I need more
» than
» » » ideas, but every good invention / business / ect… starts with an
» idea.
» » I
» » » also would need some cooperation. With over 1200 members in this
» forum,
» » we
» » » could work together on this. If we did, it would not be too much of
» a
» » task
» » » for any one person. I’m sure we have members of all types of
» » professions
» » » who posess different skills / abilities.
» » »
» » » I’m not even saying that any of the ideas I’ve had were the approach
» we
» » » should take. They are just starting points for others to add
» » CONSTRUCTIVE
» » » criticism to. Again, with over 1200 members in the forum, I’m sure
» we
» » » could put our heads together to come up with what would be best. I’m
» » not
» » » concerned if any of my ideas are used (I have no ego about that)…I
» » just
» » » want my hair back.
» » »
» » » By the way, I didn’t bring this topic up expecting any different
» » reaction
» » » that the last time I brought it up. I’ve given up on it (even though
» I
» » » think that we should do SOMETHING to help ourselves). I just brought
» it
» » up
» » » to point out the fact that we may be here years from now wishing we
» did
» » » something. (Every time it’s been discussed, other forum members
» point
» » out
» » » the fact that large companies are too far ahead and an idea like this
» » would
» » » have no impact on a solution to hairloss…but every company we put
» » our
» » » faith in disappoints us). That is not an “I told you so”…trust
» me
» » I
» » » wish that these members were right…all I want is a full head of
» » hair.
» »
» » Even though I don’t post here often, I’m with you on this idea. I’m
» tired
» » of waiting for companies like Follica and Intercytex missing deadlines
» » again and again and I would love to get my hair back soon. I’d like to
» help
» » out, is there anything I can do?
»
» Right on Someday. Im willing also. I am ready to sandpaper my head and
» start applying stuff to document to add to our collective experiences.
» Good idea, but donate money to whom? There would have to be some
» organization that accepts donations for this cause. I’m not sure how this
» would be started, but I’m sure it can and I would be willing donate and
» help in any way that I can.
We could gather up funds for the next few months to help Intercytex fund Phase III (sounds impossible, but can be done).
» We could gather up funds for the next few months to help Intercytex fund
» Phase III (sounds impossible, but can be done).
We definitely need to see phase-II results before betting on TRC. I was really optimsstic about TRC until I read Dr. Kemp’s interview, some of his answers were very vague - not a good sign!
» Why not a March against Baldness event?
The media will make us look like desparate/idiots. That is not a good idea at all. We need to get the word out but probably buy starting a consortium of some sort, not marching.
Also, we could advertise the consortium as a place to advance research in organ regeneration. Since hair is smallest organ, we starting with it
»
» The media will make us look like desparate/idiots. That is not a good idea
» at all. We need to get the word out but probably buy starting a consortium
» of some sort, not marching.
»
» Also, we could advertise the consortium as a place to advance research in
» organ regeneration. Since hair is smallest organ, we starting with it
That does sound like a better idea, start locally, nationally then internationally.
We should start out in places people will go like MySpace or Facebook.
Trust me, raising funds to aid in hairloss research is a great idea, but I don’t think that it will be achieved…at least not here. We’ve discussed it before, and when I included my e-mail address for people to respond to for a show of intrest, I received only 4-5 e-mails. We a large volume of people to support this. If we only have 4-5 people in a HAIRLOSS forum of over 1200 people support, how can expect others to show support? If you do have the determination to work on this…let me know and I am willing to help.
» Trust me, raising funds to aid in hairloss research is a great idea, but I
» don’t think that it will be achieved…at least not here. We’ve discussed
» it before, and when I included my e-mail address for people to respond to
» for a show of intrest, I received only 4-5 e-mails. We a large volume of
» people to support this. If we only have 4-5 people in a HAIRLOSS forum of
» over 1200 people support, how can expect others to show support? If you do
» have the determination to work on this…let me know and I am willing to
» help.
Once again bill, collecting money should be your LAST goal. You keep ignoring the logistics of that option.
Collecting data should be your FIRST priority. Build a Wiki/ masterlist of companies working in the field of hairloss; cross-reference it with patents, filter the patent’s ingredients/ processes into a manor people can understand, take submissions from people trying the processes and post the results online, so that others can refine the steps/ share them with the rest of us.
The Wiki could also have a masterlist of biotech’s not working in the hairloss field. People could volunteer their time to call/apprise them of the hairloss market, and our database. I admit, it’s a labor intensive prospect, but at least it avoids the pitfalls of collecting money from people.
I admit that I am a bit confused of how collecting money towards a project such as this has the drawbacks you speak of.
If you believe that developing a wiki page would be the first step towards our goal, why don’t you begin the process. I do not know how to develop this project you speak of but would be willing to work under the direction of those who do. I can’t imagine that if we had enough volunteers, it would be THAT labor intensive for any one person. Correct me if I’m wrong.
I don’t claim to have any experience (or specific knowledge) of starting an undertaking such as this. I just feel that at some point we (as a collective group) should take some action to help ourselves and am willing to contribute (financially and / or time) what I can to help. Our other option is to come here year after year and WAIT for others to help us. It hasn’t worked so far. I don’t know how anyone can disagree with this.
» I admit that I am a bit confused of how collecting money towards a project
» such as this has the drawbacks you speak of.
We already had this debate a few months ago, but I’ll recap: Assuming this community can collect a substantial amount of equity:
Whose going to hold the money: a person or an organization? Will people trust one person to hold their money? If not, whose going to setup the organization to hold that money? Who will be in charge of that organization, and who will cover that organization’s most-basic overhead?
More to the point, how will the money be rewarded, and who will decide when to reward milestone payments: A person or a committee? Again, will people trust one person to make such decisions? If not, who will appoint the committee to validate findings? The committee would require people in the medical/ business profession, and as such, they could exploit the technology presented to them for their own purposes. No biotech will divulge privileged information without assurances. Therefore, who will pay for the lawyers to ensure their technology will be protected?
If you’re confused now than wait until big chunks of money enter the formula. Bottom line, you can’t ask for money without an infrastructure to hold and dispense it.
Alternatively, my take on your idea involves low tech solutions for high tech problems. We could work with hairsite to expand the community (build a Wiki), building masterlists (directories), opening channels of communication with the organizations on those masterlists, reducing patents to their basic home-brew forms (i.e. Follica), and sharing our input so we can refine those home-brew formulas.
» » Good idea, but donate money to whom? There would have to be some
» » organization that accepts donations for this cause. I’m not sure how
» this
» » would be started, but I’m sure it can and I would be willing donate and
» » help in any way that I can.
»
» We could gather up funds for the next few months to help Intercytex fund
» Phase III (sounds impossible, but can be done).
»
» Why not a March against Baldness event?
you can not gather even 0.1% needed for phase III. IT costs hundreds of millions.
Other thing is that ICX will probably need more phase II trials before it works so good they would like to spend money on phase III.
» » I’m confused… I thought an IND was a collaboration of animal studies,
» » toxicology data, and the protocol the investigators set forth for their
» » upcoming clincial trials. Once the application is approved then they
» can
» » commence clincal trials (phase I). If Follica is planning on
» initiating
» » testing in human subjects in the later half of this year isn’t this
» » considered phase I? Is the 2-3 years implying NDA (New Drug
» Application)?
»
» Yes, I am also confused. I think the normal sequence would be:
» -Preclinical (animal)
» -IND
» -Phase 1,2,3
»
» but in this case, the preclinical is done on humans??
» I don’t think this summer trial is Phase1, nor 2.
» They said this small trial would give a “Proof of concept” or something
» like that.
»
» everything is quite confusing.
They discovered this science with mice right?? You never know if that WILL HAVE or HAS HAD any bearing on the length and speed into human/fda trials. Just a thought.
Most discoveries are done on mice. Then they test it on mice to find out safety. Then they proceed to humans. This is normal procedure. And takes decades.
The Folica deal was tested on human skin. That human skin happened to be grafted onto the back of a mouse as a life-support system for it at the time.
The only relevant aspect of the results that could be altered by this was the immunosuppression. (It has to be done so the mouse’s body won’t reject the skin graft.)
That’s why there is still question about whether the Folica method will work.
cal, do you still think the follica is either very soon or nothing at all?
btw many ppl are still alive with transplanted kidney and yet, we do not know if our immune system will reject the new hair follicle formed or not.
this sucks…
what I don’t get about follica is - why would they take so much time after having said that they will begin human trial later this year?
I mean we all know that this is work or not-work kind of method, not like intercytex’s where they have to test efficiency of injection.
I would really prefer to have follica method on the top of my head than intercytex’s becuase of consistency.
» The Folica deal was tested on human skin. That human skin happened to be
» grafted onto the back of a mouse as a life-support system for it at the
» time.
»
» The only relevant aspect of the results that could be altered by this was
» the immunosuppression. (It has to be done so the mouse’s body won’t reject
» the skin graft.)
»
» That’s why there is still question about whether the Folica method will
» work.
I have voiced an opinion of “relatively soon or not at all” about Folica and Acell.
But I was speaking in terms of when we will find out whether or not they regrow hair in testing. The timeline until a commercial release is a different question.
Right now I don’t think Folica will hit the commercial market inside of two years. Trying to predict past that, it’s mainly a question of how many rounds of FDA testing that the govt will demand for it. Could be 2 years, could be 10 years.
Either way, the commercial release date may only ever be part of the story with Folica. If it becomes known that Folica works fine in testing, then I have absolutely no doubt amateurs will be doing it long before a legit product hits the shelves. I’d probably do it myself for that matter.
» Follica could be a combination of things that are already approved but thay
» have to verify if the combination of this things are pericolous or not
»
» So fallica have do clinical trials
» I admit that I am a bit confused of how collecting money towards a project
» such as this has the drawbacks you speak of.
»
» If you believe that developing a wiki page would be the first step towards
» our goal, why don’t you begin the process. I do not know how to develop
» this project you speak of but would be willing to work under the direction
» of those who do. I can’t imagine that if we had enough volunteers, it
» would be THAT labor intensive for any one person. Correct me if I’m
» wrong.
»
» I don’t claim to have any experience (or specific knowledge) of starting
» an undertaking such as this. I just feel that at some point we (as a
» collective group) should take some action to help ourselves and am willing
» to contribute (financially and / or time) what I can to help. Our other
» option is to come here year after year and WAIT for others to help us. It
» hasn’t worked so far. I don’t know how anyone can disagree with this.
»
» Thanks for the reply Rev,
»
» Bill
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