I know also of patients who are very unhappy and at one point of time they were success cases. People still believe that their case was a success because they dont know the whole story.
I also know of patients who are not happy but they cannot complain or nake a big deal of it because they simply understand that its not the doctors fault but the nature of the procedure. they were all mislead to believe that transplants can do more than what they can actually do
We have the shills and the clinics to thank for the mizery of these people. The overselling of the procedures and the misleading representation of the results.
Except all the things that you mentioned
I think they dont post because they know that certain individuals will attempt to discredit them or make them appear as the exception which will make them feel even more bad. They have lost their faith to these forums and just dont care to share because sharing will bring more problems to them…telephones from the clinic which they dont want to deal with, shills atttacking their credibility and pointing out that they are the minority and should have more realistic expectations.
Others accept free surgeries and after that they cannot post even if they are unhappy with the repair procedure because they got it for free.
In the end you simply cannot prove that you were mislead because in all honesty it was your decision to go ahead and that doesnt change and you signed all the forms that free the doctor from his responsibilities. You are just into his good grace to offer you free repair so that you keep your mouth shut and accept the charity in exchange to your silence.
Its no secret that people are adviced or even driven by moderators and consultants “to talk to your doctor first before you come and post here” it actually became the norm and even casual posters learn to repeat the poem as if it is the right thing to do. Keep everyone in the dark about your real result and find a way to repair it without making waves
in the end it simply might be this…they are ashamed to admit that they made a bad choise, they dont want to show their pictures and others to feel sorry for them. they just want to get away from this theatre and forget